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Patient Voices

Long Covid Feels Like a Gun to My Head
Rachel Hall-Clifford, STAT News
June 18, 2024

An Emory global health professor with long COVID describes how, despite medical expertise and specialist access, treatments have brought only partial relief.

1,374 Days: My Life With Long Covid
Giorgia Lupi, The New York Times (Opinion)
December 14, 2023

Information designer Giorgia Lupi turned years of daily symptom-tracking into a data-visualization essay depicting life with long COVID day by day.

Still On the Margins: Long COVID Patients of Color
Angela Meriquez Vázquez, Disability Visibility Project
December 2, 2023

A former long-distance runner and Body Politic's former president argues patients of color remain marginalized even within the long COVID advocacy movement.

Long Covid Has Derailed My Life. Make No Mistake: It Could Yours, Too.
Madeline Miller, The Washington Post
August 9, 2023

Novelist Madeline Miller writes about living with long COVID since 2020, and argues ableism underlies public indifference to long-haulers.

What Not to Ask Me About My Long COVID
Jennifer Senior, The Atlantic
February 14, 2023

A wry etiquette guide for how not to talk to long-haulers, from an Atlantic writer who developed long COVID after a mild acute infection.

I've Suffered From 'Long COVID' for 2 Years. It's Wrecked My Life.
Karyn Bishof, Business Insider
October 25, 2022

A former firefighter-paramedic describes spending 85% of her time in bed and founding a long-hauler advocacy organization after losing her career.

A former Baltimore teacher describes losing her job, vision, and 30 pounds while doctors repeatedly dismissed her symptoms.

A science journalist wrestles with whether her roughly three-month recovery even counts as "long COVID" given competing official definitions.

A writer describes how 14+ months of debilitating symptoms shifted her husband into primary caregiver, and how the couple worked to reconnect.

Long Covid Is Not Rare. It's a Health Crisis.
Fiona Lowenstein and Hannah Davis, The New York Times
March 17, 2021

A year after infection, two patient-advocate co-authors argue long COVID is a mass-disabling event still largely ignored by policymakers.

We Need to Talk About What Coronavirus Recoveries Look Like
Fiona Lowenstein, The New York Times
April 13, 2020

Weeks after hospitalization, Fiona Lowenstein still couldn't answer whether she was "better" — an essay that helped spark the Body Politic support group.