An active peer support community with roughly 86,000 members, with daily discussion of symptoms, treatments, and coping strategies.
A moderated support community sponsored by the American Lung Association, connecting patients, families, and caregivers.
A grassroots patient movement connecting long-haulers to research studies and to each other, organized largely through Facebook.
An international peer support and advocacy association run by physiotherapists and other clinicians living with long COVID.
One of the first long COVID patient communities. Its original Slack support group closed in 2023, but its patient resource hub is still active.
A patient-led grassroots nonprofit offering community support alongside its advocacy work.